#ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12 – Fragile X News Today

At least 800 people representing some 45 countries are soon expected to gather in Austria’s capital city, Vienna, for ECRD 2018, the 9th European Conference on Rare Diseases and Orphan Products.

The May 10-12 meeting is sponsored by Eurordis, the Paris-based group that defines itself as a “patient-driven alliance” of rare disease organizations, and will focus on “collaborative strategies” that best hold promise to “leave no-one behind.”

BioNews Services — publisher of this website — plans to cover the conference from Vienna.

Panelists will discuss a range of topics based on six themes: breakthrough medicines on the horizon, quality of life, the digital patient, structuring the research and diagnosis landscape, economic perspectives in rare diseases, and global rare equity.

The meeting also features speeches and keynote addresses by Terkel Andersen, the group’s president; Beate Hartinger-Klein, Austria’s federal minister of health and social affairs; and Martin Seychell, deputy director-general for health and food

... read more at: https://fragilexnewstoday.com/2018/05/02/ecrd2018-patient-access-collaboration-focus-eurordis-meeting-may-10-12/