A miracle boy born with the ultra-rare “two face” condition has defied all odds to survive to teenage years.
Tres Johnson from Bernie, Missouri, celebrated his 13th birthday despite doctors giving him zero chance of survival at nearly every stage of his life.
He has craniofacial duplication, a disorder caused by the SHH protein that alters the formation of the skull and face. It is so rare, only 36 cases have been recorded worldwide.
Tres was born with a large cleft, his eyes spaced further apart, two separate nostrils, an abnormally shaped head and cognitive delays. He also suffers from seizures.
Parents Brandy and Joshua continue to fight for their son’s life while amazed doctors do not understand how he is alive. Many with the condition are stillborn.
Tres has undergone multiple operations to reshape his skull and close his cleft as well as treat his